2nd AnNual Breath of LIFE Barbeque, September 4, 2011
The 2nd annual BBQ was a fun day filled with live music, great food, refreshments and Chinese and silent auctions. Despite the threat of late summer storms, the event was quite successful, raising over $14,000 for Cystic Fibrosis patients!
News
Coming up!!! Muriel’s Breath of Life Annual Golf Raffle
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Hot off the press!
Cookin', Recollections and Recipes of Joe Lagnese, is a new cookbook from Joe Lagnese, Sr. All proceeds from the book will benefit Muriel's Breath of Life. The book is available for a donation of $25. Checks should be made out to Muriel's Breath of Life and mailed to Muriel's Breath of Life, 310 Grant Street, Suite 720, Pittsburgh, PA 15219. Payment can also be made via PayPal.
For more information, please go to the Events/News section of this site.
HOW YOU CAN HELP
So far, Muriel's Breath of Life has raised over $30,000 to help those living with Cystic Fibrosis. If you would like to join us in our mission to ease the burden of this disease, we invite you to consider a tax deductible donation. To find out more please click here.
who we are
Muriel's Breath of Life is a family run initiative that provides assistance to Cystic Fibrosis patients to help offset the cost of care, including, but not limited to treatment expenses not covered by insurance, transportation, and medications. Our efforts are focused on the patients under the care of the Adult Cystic Fibrosis Care Program at UPMC's Comprehensive Lung Center and Children's Hospital of Pittsburgh.Muriel's breath of life making a difference
Medications
Jamie (32) had a very challenging year with her Cystic Fibrosis, including a 62 day hospitalization. She was recently prescribed Mephyton to treat hemoptysis, an unpleasant complication of the disease. Unfortunately, the drug is not fully covered by insurance and the copays alone are $227 per month. Our fund paid for a month supply of this drug while she applied for an assistance program for long term help.
Terry (25), from Fayette County is currently struggling with many psychosocial stressors in addition to his Cystic Fibrosis. In fact., he had no health insurance and was essentially homeless, living out of bags and staying with friends. Our fund provided a month supply of medications so that Terry's care could continue while he waited to be approved by medical assistance.
TRAVEL EXPENSES
Crystal (27) , a mother of young children with limited finances from Blair County, recently needed sinus surgery. She must make frequent trips to the clinic in Pittsburgh and on multiple occasions our fund has paid for travel costs, allowing her to receive appropraite care, including her surgery.
Danielle (32), who is also from Blair County, has many struggles with her health and due to the complications of Cystic Fibrosis she has been unable to maintain long term employment. Traveling frequently to Pittsburgh presented such a financial burden that her follow up at the clinic was sporadic. With the help of our fund, Danielle was able to have all the necessary appointments scheduled over a two day period. We paid for gas, parking and an overnight stay at Family House.
Other DISEASE RELATED COSTS
We had the privilege to help a Pittsburgh family who has been greatly affected by Cystic Fibrosis. One of the three children, who all have CF, suddenly lost her battle with the disease. Our fund provided the support the mother needed to be able to spent the last few days of her daughter's life by her side. We also assisted in the funeral expenses.
Western Pennsylvania is an area of great diversity and culture. We are pleased to have the opportunity to help those in the Amish community who have been affected by Cystic Fibrosis. Due to their cultural beliefs, many of the Amish patients do not have health insurance. Recently, our fund assisted a family by providing them with a month supply of medications before discharge so that treatment could continue until the family was able to return home to the help of their local pharmacy and community.