Currently, our grants focus on patients at Antonio J. and Janet Palumbo Cystic Fibrosis Center at Children's Hospital of Pittsburgh (this is for children up to 21 years of age) and The Adult Cystic Fibrosis Care Program at UPMC's Comprehensive Lung Center (adults). The Adult and Childrens Programs care for 200 patients from the tri-state area. Some patients, like Muriel, came to the center as an adult diagnosed with delayed onset disease but most were transitioned from the care of Children's Hospital of Pittsburgh between the ages of 18 and 21.
The centers provide state of the art medical care for Cystic Fibrosis patients and education for health care professionals. The staff is also actively involved in ground breaking research. Each patient enjoys a dedicated team of pulmonologists, dietitians, social workers and respiratory therapists in addition to access to other UPMC specialists should the need arise.
Dr. Joseph Pilewski and Dr. Joel Weinberg are the current Co-Directors of the Adult Cystic Fibrosis Care Program. Dr. David Ornstein and Dr. Daniel Weiner are the Co-Directors of the Cystic Fibrosis Program at Children's Hospital of Pittsburgh. In addition to providing compassionate patient centered care, these dedicated physicians are quite active researchers, pioneering new CF therapies and heading up studies of the cellular biology of CF.
Visit the Adult Program on the web at The Adult Cystic Fibrosis Center at UPMC's Comprehensive Lung Center.
Visit the Childrens Program on the web at Antonio J. and Janet Palumbo Cystic Fibrosis Center
Muriel's Breath of Life helps ease the financial burden of Cystic Fibrosis
“Imagine knowing that treatments now exist that can be a tremendous help to you or your loved one struggling with this dreadful disease, but you can’t get them because your co-pay is beyond what you can afford. Funds and assistance can often be found for children with chronic illness, but these are not available to individuals over age 18. Muriel’s Breath of Life can be there to help by providing the extra assistance needed for these individuals to obtain life-supporting care and medications that they need to survive and improve their quality of life. In some cases, just removing the stress of paying for gas and parking to get to the hospital to visit a loved one or come to a clinic appointment is a tremendous relief. For others, financial help may mean the ability to get a life-saving antibiotic that may not be covered bytheir health insurance. Muriel's Breath of Life is a vital resource for these patients.”